Well we picked up my new MRI yesterday. It was one with contrast and shows a lovely black patch that has been labelled an artifact. Ok no mass or lump but it doesnt rule out something in there completely. I am still pushing for a diagnosis.
Today we went back to the hospital where I had the PET CT and saw a neurologist I had seen at another hospital a few years ago. After a long chat he has referred me to his mate at another hospital for a Monday appointment and ...... a biopsy of my leg. YAY!!!!! maybe now I can get a diagnosis and move forward.
Love and hugs to all