In fact it has been so long the whole format of my blog site has changed and I have no idea what I am doing here anymore.
So what has been going on?
Well I have finally found what seems to be the reason for my headache.I have an alpha1 antitrypsin deficiency.It is a genetic liver disease and there is no cure.
It seems that as the liver has deteriorated it irritates the astrocytes in the brain (these are special cells in the brain that look like little stars under the microscope and that is how they got their name) and so they leak.The resulting edema is what causes the increased pressure in my head.Not an over production of CSF as I have been being told for years now and not a malfunction of the brain to absorb the fluid. This misdiagnosis happened because they have ALL told me that the increase protein in the CSF when they did spinal taps was "insignificant" and "not important". Heck why have a normal range then if this is not an important factor.
So now I have choices and I am not shadow boxing anymore and I have an understanding of a prognosis.I am not sure I like it but at least it is better than having no idea nor anyway to look after myself because I dont know they underlying cause.
Got to rest a little more now.
Love and Hugs